Attempted tube wean: A diary

Baby A pulled out her NG feeding tube last weekend and we left it out for about 8 hours and she did alright. So, after a conversation with her nurse, we've decided to take it out to see how she goes.
We will stop this attempt at any time if:

• She takes less than 300ml in 24 hours (thats a baseline amount for hydration.)

• She dramatically loses weight

• She is dehydrated or lethargic

Battling to wean a tube fed baby in NZ

So here we are. Baby A is nearly 5 months old - 10 weeks corrected- and still dependent on her tube. 

Letting go of expectations

As the days go by and Baby A still struggles with her feeding, I have become more disheartened.

I had expectations, that she would be off her naso-gastric feeding tube and feeding orally by 37 weeks gestation, by the time she went home, by a week or two after she went home, by the time she was 3kg.

As each milestone has passed by, and her feeding has not improved, I have become more stressed, over it, tired, weary.

Tired Mummy and baby